Thursday, March 16, 2017

Give to the Down Syndrome Diagnosis Network!

Today, I want to share an email I recently received from a client's mother, Ashly Williams.  She is an amazing mother with a wonderful family who we all grew to love here at the clinic.  She is a volunteer with the Down Syndrome Diagnosis Network.  Please read below to find out how you can help!


From Ashly:
When I found out that I could raise money for Down Syndrome Diagnosis Network and help pay my way to the annual DSDN retreat in Chicago I just knew I had to help!

Down Syndrome Diagnosis Network is a non-profit organization that is 100% volunteer base. They are an online-based network that has made it their mission to support new and expectant parents of children with Down syndrome.

Our organization is growing every day. One thing I really love about DSDN is being able to reach out to new moms and know that they are added to Rockin mom's groups for the extra support they need. 
If you would like to donate to this wonderful cause please let me know! If I reach a certain goal, my registration for the 2017 Rockin' Moms Retreat in Chicago will be covered!

That's why I created a fundraiser to support Down Syndrome Diagnosis Network. I am very passionate about DSDN, and their mission to support new and expectant parents of children with Down syndrome by providing information, connections and support—and you can be a part of it.

Check out my fundraising page and please consider making a donation to help me reach my goal of $1,000. So far we have raised $521, we are over half way there. 

Giving online is easy and fast, and your support will make a real difference. I appreciate your help!

Tuesday, March 7, 2017

Shopping While Autistic

Sometimes it's difficult for neurotypical people to imagine what it's like to live with the kinds of sensory issues that people on the autism spectrum experience.  Lynne Soraya, an author with Asperger's Syndrome, describes something as seemingly mundane as grocery shopping in this article:

Shopping While Autistic



This is how she describes the low point of her shopping excursion:
A black mist has descended over my vision, I must fight to focus through it. My vision has become subtly pixellated, like a pointillist painting, and I see after-images each time I change focus.  Little bright spots dance across my vision. My ears hurt, my head hurts, and I feel nauseous, but I can’t leave.  Not yet.

 She then concludes:
So, the next time you see a child melting down in a store, please stop for a moment to consider. Try to tune into the sounds and sensory experiences that you normally tune out.  Try to imagine what it must feel like to experience them full force, at the type of intensity that can send even an experienced person over the edge.

It's easy to take for granted how much many of us tune out the sensory input coming at us from our environment.  Descriptions like Lynne's help us remember and empathize with those who have more difficulty than typical.